Together we can. Together we will.


What is BWS Awareness Day? 

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Free Online Event

You are invited to the First Annual BWS Awareness Virtual Summit to help you with advocacy, awareness, and collaboration for your child's diagnosis. Sign up here to access the BWS Awareness Virtual Summit coming April 6th, 2019.

For decades parents, families, friends, and the medical community have led the effort to spread awareness about Beckwith-Wiedemann Syndrome (BWS). 

  • Each year people from around the world come together on April 6th to combine their ignited passions, creating the momentum needed to reach new families and medical providers.

  • You are invited to the Annual Awareness & Advocacy Online Summit on BWS Awareness Day Virtual. A free online event on April 6th about Advocacy, Awareness, and Collaboration for your child's diagnosis.

Together We Can: Tag a Pediatric Medical Provider

The campaign is about collaboration between families and the medical community to advocate for the best care for the children diagnosed, or undiagnosed, with Beckwith-Wiedemann Syndrome. The goal of this campaign is to show providers what children with BWS actually look like, understand from the medical community how families can best advocate for this child, and by miraculous chance help at least 1 family find the resources & support they have been seeking.


Join In Raising Awareness April 6th Around the World

Now is your time to join us and carry on this mission. A way to say Thank You to those who make today possible and the future brighter.  Someone is waiting for information right now. Help make April 6th the biggest and best event ever!